Although at 45 years old, I am paralyzed from the neck down and
unable to smile, breathe without a ventilator, or speak after being
afflicted with ALS,
please don’t feel sorry for me. I am happier, and more
fulfilled than I have ever been. Let me try to give you a
glimpse into my experience so far.
When I was of an impressionable age,
a wise man taught me the
phrase “The world is a smorgasbord, but most suckers are
starving to death”. This concept became ingrained in me, and I
live it every day.
traveled far, had many diverse
adventures, and look back with few regrets.
One day, many years ago, it occurred to me that an ALS diagnosis
was not the end of my life. I realized that if I got a feeding
tube and a ventilator, I could live a lot longer, but quality of
life would be an issue. I must surrender to that which I had no
control (my body's deterioration) and begin to build on that
which still had great growth potential (my mind and
spirituality). I could spiral downward into misery, or use my
circumstances as a catalyst for mental and spiritual expansion.
I had a choice! The elation that paradigm shift brought, became
the spark that would inspire a profound transformation.
my body has weakened to the point of being simply a support
system for my brain, I have become more in tune with my true
the world has more meaning, and my appetite for and ability to
comprehend new knowledge has grown. Recently I have developed a
digital painting; and have been exploring Astrophysics,
Quantum Mechanics, World History, Classical Music from the
baroque period, the nature of
Anthropology of the Americas, the cultures, music, plights and
spirituality of various Native American Nations, and Asian music,
religions and philosophy. In the U.S.,
the blind and disabled library
provides a large selection of books on tape via U.S. mail.
have always been a traveler, and always will be. Because it is
now more difficult to travel to distant places, I have begun a
journey inward. I am on a quest to move toward the full potential
of human consciousness, and achieve a higher awareness of the
universe around me (see
This pursuit has been just as fruitful and fulfilling as any
trip to a foreign culture. The
souvenirs I bring back
extremely precious, and useful as tools to become a more
positive force in this world.
believe I owe the pleasure that life brings me to living in the
mindfulness meditation, my solid
"Law of Attraction", and the elegant partnership I share with my
nurturing wife Jen. It is a beautiful gift to live on this
hospitable planet, during this era of rapid scientific
discovery. A time when more and more minds are opening to
the interdependent reality of our world. We should all cherish every moment.
you were recently diagnosed with ALS, understand that it is not
necessarily the horrible experience that most say it is.
From your unique perspective, you may have the ability to see
the full beauty and diversity of this life. You have a choice.
When we meet
real tragedy in life, we can react in two ways -
either by losing hope and falling into
self-destructive habits, or by using the
challenge to find our inner strength.